Down Syndrome and SSI Benefits for a Child
Down syndrome is a genetic disorder which occurs when the nucleus of a cell contains an extra copy of chromosome 21, instead of the typical 23 chromosomes, half of which are inherited from the mother and the other half from the father.
Due to the additional genetic material, development for the child is disturbed and the child may develop common traits such as reduced muscle tone, small stature and upward slanted eyes. The traits and the severity of the disorder can vary by individual. Currently one out of 700 babies are born with this condition, and approximately 400,000 Americans are currently living with Down Syndrome.
There is no cure for Down Syndrome. Doctors recommend therapy specific for the child's symptoms to help them manage their condition. Treatment options include behavioral, educational, and medical therapies.
Supplemental Security Income (SSI) and Down Syndrome
The Social Security Administration (SSA) provides Supplemental Security Income (SSI) to children who are disabled with a severe health condition. To qualify families must also have very limited income and resources. If your family does not meet the income and resource limitations then your child will not qualify for SSI, regardless of the severity of their health condition.
Meeting a Listing for Supplemental Security Income
Children may be considered disabled and qualify for SSI if their condition meets or equals a listing on the SSA Listing of Impairments. This listing outlines the conditions and their corresponding symptoms the SSA considers automatically disabling. Having a listed condition may not be sufficient for your child to win SSI benefits. They must also have symptoms which are as severe as the listed symptoms.
Down Syndrome is a listed condition under 110.00 Congenital Disorders that Affect Multiple Body Systems, 110.06 Non-mosaic Down syndrome (chromosome 21 trisomy or chromosome 21 translocation).
Under this listing the SSA will expect "a laboratory report of karyotype analysis signed by a physician, or both a laboratory report of karyotype analysis not signed by a physician and a statement by a physician that the child has Down syndrome or a physician's report stating that the child has chromosome 21 trisomy or chromosome 21 translocation consistent with karyotype analysis with the distinctive facial or other physical features of Down syndrome (see 110.00C2a)."
To win benefits you may also have "a physician's report stating that the child has Down syndrome with the distinctive facial or other physical features and evidence demonstrating that the child is functioning at the level of a child with non-mosaic Down syndrome (see 110.00C2b)."
Denied Disability Benefits for Down Syndrome
If your child is diagnosed for Down Syndrome it is probably because the SSA determined your income and resource level were too high for benefits, and it will be impossible to appeal and win benefits unless your income and resource level are reduced to the appropriate levels. Talk to the SSA for more information.
Adults with Down Syndrome
Although most children who are born with Down Syndrome will receive SSI benefits right away, it may be possible that a child was living with their parents and their income and resources were too high to win benefits as a child. If the living arrangements for this individual changes or the child moves out of their parent's home they may qualify for SSI benefits as an adult if they can prove they cannot work.
Need Help with a Down Syndrome Disability Claim?
Complete the short form and a Disability Advocate will review your case for FREE. It's 100% Confidential and there's No Obligation. What do you have to lose? Get help winning your disability case today!