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SSA Compassionate Allowance updates to be made in August 2012

The Compassionate Allowance program was created to expedite the disability process for SSI and SSDI applicants who have a severe mental or physical health condition that obviously meet the SSA disability standards.

According to the SSA website, the conditions contained on the Compassionate Allowance list were “gathered at public outreach hearings, comments received from the Social Security and Disability Determination Service communities, counsel of medical and scientific experts, and our research with the National Institutes of Health (NIH).”

In 2011, the Commissioner of the SSA announced that the Social Security Administration would add another 12 new conditions to their CAL list. As of 2011, there are 113 conditions on the Compassionate Allowance list.

Compassionate Allowance Updates for 2012

The Social Security Administration (SSA) has given notice that effective August 13, 2012, they will add another 52 conditions to the Compassionate Allowance List. Commissioner Astrue recently announced the addition of 52 Compassionate Allowance conditions to the current list, bringing the total number of CAL conditions to 165.

Beginning in August 2012, the Social Security Administration’s computer systems will automatically flag incoming SSI and SSDI applications for claimants with these new conditions. Notification through the SSA disability software will be sent to the disability examiner to ensure that the SSI and SSDI cases are given priority processing by the SSA.

What about cases which meet the new CAL requirements which are submitted prior to the new process? Disability examiners will not be automatically notified about pending SSI and SSDI cases but should be able to manually expedite the affected cases.

Questions from the Public about the new conditions

According to the SSA, the public should be notified that the new conditions will not be on the list until August 13, 2012, that the claimant should go ahead and apply for SSI and SSDI even if the new conditions are not yet considered part of the list. Claimants are also allowed to make an appointment with an SSA representative if needed to discuss the disability process.

What conditions are going to be added to the Compassionate Allowance List?

Aicardi-Goutieres Syndrome Lissencephaly
Alobar Holoprosencephaly Lymphomatoid Granulomatosis Grade III
Alpers Disease Malignant Brain Stem Glioma- Childhood
Alpha Mannosidosis Malignant Melanoma with metastases
Carcinoma of Unknown Primary Site Mastocytosis Type IV
Cerebrotendinous Xanthomatosis Medulloblastoma with metastasis
Child Neuroblastoma Merkel Cell Carcinoma with metastases
Child Non-Hodgkin Lymphoma Myocolonic Epilepsy and Ragged Red Fibers Syndrome
Chondrosarcoma with multimodal therapy Nephrogenic Systemic Fibrosis
Cornelia de Lange Syndrome-Classic Form Obliterative Bronchiolitis
Ewings Sarcoma Ohtahara Syndrome
Follicular Dendritic Cell Sarcoma with metastases Orthochromatic Leukodystrophy with Pigmented Glia
Fucosidosis-Type 1 Pearson Syndrome
Galactosialidosis-Early Infantile Type Pelizaeus-Merzbacher Disease-Classic Form
Glioma Grade III and IV Pelizaeus-Merzbacher Disease-Connatal Form
Hallervorden-Spatz Disease Peripheral Nerve Cancer-metastatic or recurrent
Hepatoblastoma Perry Syndrome
Histiocytosis Rhabdomyosarcoma
Hutchinson-Gilford Progeria Syndrome Rhizomelic Chondrodysplasia Punctata
Hydranencephaly Schindler Disease Type 1
Hypocomplementemic Urticarial Vasculitis Smith Lemli Opitz Syndrome
Hypophosphatasia Perinatal lethal form Spinal Nerve Root Cancer-metastatic or recurrent
I Cell disease Stiff Person Syndrome
Infantile Free Sialic Acid Storage Disease Tabes Dorsalis
Juvenile Onset Huntington Disease Wolf-Hirschhorn Syndrome
Kufs Disease Type A and B Xeroderma Pigmentosum

If your SSI or SSDI application is denied and you are filing an appeal, if it is after August 2012 you should indicate that your condition is now part of the Compassionate Allowance List.
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