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Polystotic Fibrous Dysplasia and Getting Social Security Disability Benefits

Dysplasia is a general term that is used in reference to the abnormal development or growth of organs, tissues or cells. Dysplasia generally consists of an expansion of immature cells with a corresponding decrease in the location and number of mature cells.

Fibrous dysplasia is an ongoing, chronic bone disorder that is marked by a portion of bone developing abnormally. The place of normal bone is taken by scar-like (fibrous) tissue. This softer fibrous tissue expands as your bone continues to grow. As this takes place, your bone becomes weakened.

Fibrous dysplasia may lead to your affected bone or bones becoming deformed. This, in turn, causes your bone or bones to be more prone to break (fracture).

Begins before birth


Fibrous dysplasia starts before you are born. However, fibrous dysplasia may not be diagnosed until you reach childhood, adolescence or adulthood.

Fibrous dysplasia is a disorder that is brought about by a gene mutation (defect). This gene defect involves your cells that make bone. The cause of this gene defect, however, is not known. What is known is that this disorder is not passed down or inherited by the children of parents who are affected by the disease. Fibrous dysplasia also has no known dietary or environmental cause.

About 7% of all benign (non cancerous) bone tumors are the result of fibrous dysplasia. Most of the time, the disorder involves your shinbone, thighbone, pelvis, upper arm bone and skull. However, fibrous dysplasia may affect any bone in your body.

In most cases, fibrous dysplasia involves only one of your bones. When this is true, it is referred to as monostotic fibrous dysplasia.

When two or more bones are affected


Fibrous dysplasia can also affect two or more of your bones. When it does so, it is called polystotic fibrous dysplasia. Polystotic fibrous dysplasia may affect two bones in your same limb. Or, polystotic fibrous dysplasia may include several bones all over your skeleton.

Polystotic fibrous dysplasia is sometimes referred to as McCune-AlbrightÂ’s syndrome. However, polystotic fibrous dysplasia is one of the primary features of McCune-AlbrightÂ’s syndrome.

If you have polystotic fibrous dysplasia, you usually begin to have signs and symptoms by the time that you are 10 years old. When polystotic fibrous dysplasia is severe, signs and symptoms may include:

Lesions (bone sores)
Bone pain that gets worse with activity and eases with rest
Unusual skin color (pigmentation)
Deformities of your bone
Problems with your endocrine gland
Difficulty walking
Breaks (fractures).

Although polystotic fibrous dysplasia is not on the list of impairments of the Social Security Administration, it does not necessarily mean that you will not qualify for social security disability benefits. If the disorder is severe enough, it may have brought about your disability and be what is preventing you from working. Or, you may have other conditions along with polystotic fibrous dysplasia that together cause you to be disabled and unable to work.

You really ought to contact a social security disability attorney to discuss and evaluate your case. A social security disability attorney will work hard to see that you are approved by the Social Security Administration for social security disability benefits.


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